Data Protection

FinnGen utilises genome data (genetic data) generated from biobank samples, along with health-related data from social and healthcare registers. The study is committed to ensuring that the privacy and integrity of participants are not compromised. The members of the research project only handle data that has been coded with a FinnGen ID (pseudonymised).

All data processing in FinnGen takes place for the sole purpose of scientific research under our scientific plan approved by the local ethical board. Furthermore, the study follows the instructions provided by the national Ombudsman.

Detailed information on the processing of personal data in the study can be found from our data protection statement webpage (accessible version) or by downloading the data protection statement as a PDF file.