Public data releases

According to the FinnGen consortium agreement, FinnGen results are subject to a one year exclusivity period to the FinnGen Partners and, after that, can be made available to the larger scientific community.

The results can be browsed with the web browser (PheWeb) and summary statistics data can be downloaded from a Google cloud storage free of charge. Read more from our Access results page.

FinnGen itself cannot distribute or share the individual-level sensitive data outside of the consortium, as based on National and European regulations (GDPR) access to individual-level sensitive health data must be approved by national authorities for specific research projects and for specifically listed and approved researchers. 

The health data used in FinnGen has been generated and provided by the National Health Register Authorities (Finnish Institute of Health and Welfare, Statistics Finland, KELA, Digital and Population Data Services Agency) and approved, either by the individual authorities or by the Finnish Data Authority, Findata, for use in the FinnGen project. Therefore, FinnGen is not in a position to grant access to individual-level data to others.

However, any researcher can apply for the health register data from the Finnish Data Authority Findata and for individual-level genotype data from Finnish biobanks via the Fingenious portal hosted by the Finnish Biobank Cooperative FINBB. 

All Finnish biobanks can provide access for research projects within the scope regulated by the Finnish Biobank Act, which is research utilising the biobank samples or data for the purposes of promoting health, understanding the mechanisms of disease or developing products and treatment practices used in health and medical care.