Health registries

FinnGen study is based on combining genetic and electronic health record data.

The study applies the permissions to utilise the register data for research purposes from these national registries:

Statistics Finland
Finnish Cancer Registry and Mass Screening Registry
Register of Primary Health Care Visits (Avohilmo)
Care Register for Health Care
Kela
Digital and Population Data Services Agency
Finnish Register of Visual Impairment
Care Register for Social Welfare
Finnish Registry for Kidney Diseases
Finnish National Infectious Diseases Register
Medical Birth Register
Finnish National Vaccination Register
Register of Congenital Malformations

FinnGen in brief

FinnGen is a large public-private partnership aiming to collect and analyse genome and health data from 500,000 Finnish biobank participants. FinnGen aims on one hand to provide novel medically and therapeutically relevant insights but also construct a world-class resource that can be applied for future studies.

FinnGen is one of the very first personalized medicine projects at this scale and the public-private collaborative nature of the project is exceptional compared to many ongoing studies. FinnGen brings together Finnish universities, hospitals and hospital districts, THL, Blood Service, biobanks, FINBB and international pharmaceutical companies and hundreds of thousands of Finns. Because collaboration is the key to achieving breakthroughs in disease prevention, diagnosis, and treatment, we welcome everyone on this journey into our shared heritage.